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      The Medical Thread.

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      FATKOPITE10
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      • Liverpool fc give me tourettes
      Re: The Medical Thread.
      Reply #125: Nov 06, 2019 06:26:16 pm
      Got my review from the clinic yesterday , alls good, anxiety will cease for a while now until the next six month check up dawns on me , still could have been lot worse .

      Good news mate
      andylfcynwa
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      Re: The Medical Thread.
      Reply #126: Nov 06, 2019 10:35:55 pm
      Thanks too all of you , and you’re kind words
      Cheers 🍻
      6stringer
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      Re: The Medical Thread.
      Reply #127: Nov 26, 2019 08:28:47 pm
      Haven't been as active on here these last few months due to the worsening of my Cardiomyopathy.
      Basically my left ventricle is enlarged and out of synch with the right ventricle, the shortness of breath, doing any task whatsoever was really getting me down.
      I have had a defib(ICD) fitted in my upper chest for ten years but it only paces the right ventricle.
      My cardiologist mentioned that there is a brand new wireless piece of technology which synchronises the left and right and would I be interested in taking part in the trial, which as it stands has around 300 patients worldwide taking part.
      This is it.....
      youtu.be/ro33O-eNMR8
      I jumped at the chance..
      So, after a few consultations with the incredible team of surgeons and cardiologists at Liverpool Heart & Chest Hospital along with some tests on myself to see if I was compatible for the trial, I was given the green light.

      I was admitted on the Wednesday morning and was taken to theatre early afternoon and I had the battery and connecting transmitter implanted under general, which took just over three hours.
      Then on Friday I was back in the Cath theatre for anther three hour procedure, only this time under local, where-by the surgeon went into the main artery in my groin, up and over the lungs and down into the LV of my heart, before burying the tiny grain of rice sized receiver into the wall of the left ventricle..A very tricky procedure which could've gone either way..
      It was only the surgeons second time he done this operation but he was super confident and I had every faith in him to do the job.
      Eventually he turned to me and said we are in and all done.
      The dozen or so people in theatre were in awe of what they had just witnessed, radiologists, physiologists, nurologists, they were blown away with the technology involved.. one of the nurses was in tears..This was only the fifth time this procedure has taken place at LHCH.
      I had just taken part in ground breaking surgery, which if successful, will help people with heart failure around the world.

      I had a chest x-ray and some blood tests done on the Saturday morning and was discharged later in the afternoon and flew home in time to watch the might reds smash Man City 3-1 the following day.

      You're wanting to know if it's made any difference aren't you?
      Well, the trial is a double blinded trial, so I have been assigned to one of two groups.
      Group A has had the device turned on and is pacing in synch as programmed
      Group B on the other hand hasn't been activated and will rely on the placebo effect along with a regime of meds to take
      I will be monitored every two months and after six months they will inform me of which group I was assigned and the device will be switched on if I was assigned to group B as will everyone who is taking part.
      I say double blinded, as even the surgeon and everyone in theatre didn't know either..

      I do feel better though I must admit.. my breathing is much better.. but is that the blood thinners they've given me and the overall positivity?
      I went back to work yesterday, still can't drive though until next week.

      Anyways, just thought I'd share this with you all..
      If you have heart failure or know someone who has, hopefully this style of technology could help you or a family member?

      One thing I will say is how utterly professional and caring every member of staff was at LHCH during my 3 day stay.
      I don't know whether it is just me getting older but the surgical team of around a dozen must've had an average age of late 30's early 40's.. super confident surgeons embracing the technology.. In fact one of the chaps had an Ipad in his hand stood next to the surgeon looking at the mass of monitor screens to my left..

      Don't think i'm quite ready to meet the bearded man in the white robe just yet ! ;D





      Scotia
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      Re: The Medical Thread.
      Reply #128: Nov 27, 2019 10:43:20 pm
      Haven't been as active on here these last few months due to the worsening of my Cardiomyopathy.
      Basically my left ventricle is enlarged and out of synch with the right ventricle, the shortness of breath, doing any task whatsoever was really getting me down.
      I have had a defib(ICD) fitted in my upper chest for ten years but it only paces the right ventricle.
      My cardiologist mentioned that there is a brand new wireless piece of technology which synchronises the left and right and would I be interested in taking part in the trial, which as it stands has around 300 patients worldwide taking part.
      This is it.....
      youtu.be/ro33O-eNMR8
      I jumped at the chance..
      So, after a few consultations with the incredible team of surgeons and cardiologists at Liverpool Heart & Chest Hospital along with some tests on myself to see if I was compatible for the trial, I was given the green light.

      I was admitted on the Wednesday morning and was taken to theatre early afternoon and I had the battery and connecting transmitter implanted under general, which took just over three hours.
      Then on Friday I was back in the Cath theatre for anther three hour procedure, only this time under local, where-by the surgeon went into the main artery in my groin, up and over the lungs and down into the LV of my heart, before burying the tiny grain of rice sized receiver into the wall of the left ventricle..A very tricky procedure which could've gone either way..
      It was only the surgeons second time he done this operation but he was super confident and I had every faith in him to do the job.
      Eventually he turned to me and said we are in and all done.
      The dozen or so people in theatre were in awe of what they had just witnessed, radiologists, physiologists, nurologists, they were blown away with the technology involved.. one of the nurses was in tears..This was only the fifth time this procedure has taken place at LHCH.
      I had just taken part in ground breaking surgery, which if successful, will help people with heart failure around the world.

      I had a chest x-ray and some blood tests done on the Saturday morning and was discharged later in the afternoon and flew home in time to watch the might reds smash Man City 3-1 the following day.

      You're wanting to know if it's made any difference aren't you?
      Well, the trial is a double blinded trial, so I have been assigned to one of two groups.
      Group A has had the device turned on and is pacing in synch as programmed
      Group B on the other hand hasn't been activated and will rely on the placebo effect along with a regime of meds to take
      I will be monitored every two months and after six months they will inform me of which group I was assigned and the device will be switched on if I was assigned to group B as will everyone who is taking part.
      I say double blinded, as even the surgeon and everyone in theatre didn't know either..

      I do feel better though I must admit.. my breathing is much better.. but is that the blood thinners they've given me and the overall positivity?
      I went back to work yesterday, still can't drive though until next week.

      Anyways, just thought I'd share this with you all..
      If you have heart failure or know someone who has, hopefully this style of technology could help you or a family member?

      One thing I will say is how utterly professional and caring every member of staff was at LHCH during my 3 day stay.
      I don't know whether it is just me getting older but the surgical team of around a dozen must've had an average age of late 30's early 40's.. super confident surgeons embracing the technology.. In fact one of the chaps had an Ipad in his hand stood next to the surgeon looking at the mass of monitor screens to my left..

      Don't think i'm quite ready to meet the bearded man in the white robe just yet ! ;D







      Good to hear from ya fella. You just keep on going and leave it to the docs.

      Go on my man 👍👌
      frizzby5
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      Re: The Medical Thread.
      Reply #129: Oct 18, 2020 09:22:32 am
      I've been taking 'Nexium' for a Reflux problem for about 10yrs and in that time I've moved Countries 4 times, well my 'Doc down under' suggested getting checked out as he wasn't prepared to keep giving me the tablet ad hoc so he sent me off to a see a specialist 300km away who made an appointment for a Gastroscopy (camera down throat!) anyway long story short, I'm now being operated on on Tuesday for removal of cancerous tonsils and a lump in my throat not being able to return home for 2 weeks as there's a high risk of post op bleeding and we live too rural!
      After that there's a Cancerous Kidney to remove ASAP! Which they found whilst checking out my throat cancer courtesy of a PET CT SCAN. all these doctors, referrals, specialists and surgeons with separate 600km overnight round trips to the nearest hospital to finally get to this point! and then we've got 6 weeks solid chemo with no return home! so that takes us into the new year. (hopefully!)
      I was hoping for 3 points to put me in a better mood But i suppose I'm being too demanding.



      Dadorious
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      Re: The Medical Thread.
      Reply #130: Oct 18, 2020 09:46:31 am
      I've been taking 'Nexium' for a Reflux problem for about 10yrs and in that time I've moved Countries 4 times, well my 'Doc down under' suggested getting checked out as he wasn't prepared to keep giving me the tablet ad hoc so he sent me off to a see a specialist 300km away who made an appointment for a Gastroscopy (camera down throat!) anyway long story short, I'm now being operated on on Tuesday for removal of cancerous tonsils and a lump in my throat not being able to return home for 2 weeks as there's a high risk of post op bleeding and we live too rural!
      After that there's a Cancerous Kidney to remove ASAP! Which they found whilst checking out my throat cancer courtesy of a PET CT SCAN. all these doctors, referrals, specialists and surgeons with separate 600km overnight round trips to the nearest hospital to finally get to this point! and then we've got 6 weeks solid chemo with no return home! so that takes us into the new year. (hopefully!)
      I was hoping for 3 points to put me in a better mood But i suppose I'm being too demanding.




      Sorry to hear mate hope it all works out stay strong!
      frizzby5
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      Re: The Medical Thread.
      Reply #131: Oct 18, 2020 09:59:33 am
      Sorry to hear mate hope it all works out stay strong!


      Knocked me for six it did but the throat cancer has a 97% success rate post chemo as we've caught it early due to my own docs insistence I see someone regarding my reflux, the Kidney issue should resolve itself as the cancerous bit will be coming out with it and it hasn't spread elsewhere!
      Kopite78
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      Re: The Medical Thread.
      Reply #132: Oct 18, 2020 10:07:15 am
      I've been taking 'Nexium' for a Reflux problem for about 10yrs and in that time I've moved Countries 4 times, well my 'Doc down under' suggested getting checked out as he wasn't prepared to keep giving me the tablet ad hoc so he sent me off to a see a specialist 300km away who made an appointment for a Gastroscopy (camera down throat!) anyway long story short, I'm now being operated on on Tuesday for removal of cancerous tonsils and a lump in my throat not being able to return home for 2 weeks as there's a high risk of post op bleeding and we live too rural!
      After that there's a Cancerous Kidney to remove ASAP! Which they found whilst checking out my throat cancer courtesy of a PET CT SCAN. all these doctors, referrals, specialists and surgeons with separate 600km overnight round trips to the nearest hospital to finally get to this point! and then we've got 6 weeks solid chemo with no return home! so that takes us into the new year. (hopefully!)
      I was hoping for 3 points to put me in a better mood But i suppose I'm being too demanding.

      Stay strong buddy, hope everything goes well and the treatment works
      frizzby5
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      Re: The Medical Thread.
      Reply #133: Oct 18, 2020 11:21:30 am
      Stay strong buddy, hope everything goes well and the treatment works

      I'll be going in wearing my Mo Salah 'Never Give Up' shirt!
      Klopps Snood
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      Re: The Medical Thread.
      Reply #134: Oct 18, 2020 09:05:45 pm
      I've been taking 'Nexium' for a Reflux problem for about 10yrs and in that time I've moved Countries 4 times, well my 'Doc down under' suggested getting checked out as he wasn't prepared to keep giving me the tablet ad hoc so he sent me off to a see a specialist 300km away who made an appointment for a Gastroscopy (camera down throat!) anyway long story short, I'm now being operated on on Tuesday for removal of cancerous tonsils and a lump in my throat not being able to return home for 2 weeks as there's a high risk of post op bleeding and we live too rural!
      After that there's a Cancerous Kidney to remove ASAP! Which they found whilst checking out my throat cancer courtesy of a PET CT SCAN. all these doctors, referrals, specialists and surgeons with separate 600km overnight round trips to the nearest hospital to finally get to this point! and then we've got 6 weeks solid chemo with no return home! so that takes us into the new year. (hopefully!)
      I was hoping for 3 points to put me in a better mood But i suppose I'm being too demanding.

      Sympathise with you Frizz as I have been going through similar problems myself, its not as bad as yours fortunately but I've also recently had an endoscopy (camera down the throat) and I've been to hospital this morning for a rather uncomfortable colon scan, they're checking me both ends for cancer as my Dad died 2 years ago with bowel cancer and my Sister has had cancer for about 10 years, so it's in the family as it is with a lot of families these days.

      I'll be thinking of you Tuesday and hope everything goes well for you, keep your spirits up and stay strong, we're all behind you.
      Cas xx
      Kopite78
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      Re: The Medical Thread.
      Reply #135: Oct 18, 2020 09:11:31 pm
      Sympathise with you Frizz as I have been going through similar problems myself, its not as bad as yours fortunately but I've also recently had an endoscopy (camera down the throat) and I've been to hospital this morning for a rather uncomfortable colon scan, they're checking me both ends for cancer as my Dad died 2 years ago with bowel cancer and my Sister has had cancer for about 10 years, so it's in the family as it is with a lot of families these days.

      I'll be thinking of you Tuesday and hope everything goes well for you, keep your spirits up and stay strong, we're all behind you.
      Cas xx

      Hope all is going to be ok Cas

      Thinking of you x
      Klopps Snood
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      Re: The Medical Thread.
      Reply #136: Oct 18, 2020 09:46:01 pm
      Hope all is going to be ok Cas

      Thinking of you x

      Thanks hun, it's the waiting around for the results now, fingers crossed.
      AussieRed
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      Re: The Medical Thread.
      Reply #137: Oct 18, 2020 10:52:51 pm
      I've been taking 'Nexium' for a Reflux problem for about 10yrs and in that time I've moved Countries 4 times, well my 'Doc down under' suggested getting checked out as he wasn't prepared to keep giving me the tablet ad hoc so he sent me off to a see a specialist 300km away who made an appointment for a Gastroscopy (camera down throat!) anyway long story short, I'm now being operated on on Tuesday for removal of cancerous tonsils and a lump in my throat not being able to return home for 2 weeks as there's a high risk of post op bleeding and we live too rural!
      After that there's a Cancerous Kidney to remove ASAP! Which they found whilst checking out my throat cancer courtesy of a PET CT SCAN. all these doctors, referrals, specialists and surgeons with separate 600km overnight round trips to the nearest hospital to finally get to this point! and then we've got 6 weeks solid chemo with no return home! so that takes us into the new year. (hopefully!)
      I was hoping for 3 points to put me in a better mood But i suppose I'm being too demanding.





      Oh mate, I'm so sorry to hear this.

      Hope everything goes well mate and wishing you a speedy recovery.

      One question, where the f**k are you staying if you are so far away from treatment?

      You in the Outback? Thought you were in Country Queensland!

      frizzby5
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      Re: The Medical Thread.
      Reply #138: Oct 19, 2020 08:47:37 am
      Stay strong buddy, hope everything goes well and the treatment works

      Sympathise with you Frizz as I have been going through similar problems myself, its not as bad as yours fortunately but I've also recently had an endoscopy (camera down the throat) and I've been to hospital this morning for a rather uncomfortable colon scan, they're checking me both ends for cancer as my Dad died 2 years ago with bowel cancer and my Sister has had cancer for about 10 years, so it's in the family as it is with a lot of families these days.

      I'll be thinking of you Tuesday and hope everything goes well for you, keep your spirits up and stay strong, we're all behind you.
      Cas xx

      Oh mate, I'm so sorry to hear this.

      Hope everything goes well mate and wishing you a speedy recovery.

      One question, where the f**k are you staying if you are so far away from treatment?

      You in the Outback? Thought you were in Country Queensland!


      Thanks to all 3 of you and to answer your question AussieRed I'm in Collinsville 80k inland from Bowen which is midway between Townsville & Mackay treatment is in Townsville.
      Steve
      Dadorious
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      Re: The Medical Thread.
      Reply #139: Oct 19, 2020 09:31:06 am
      Sympathise with you Frizz as I have been going through similar problems myself, its not as bad as yours fortunately but I've also recently had an endoscopy (camera down the throat) and I've been to hospital this morning for a rather uncomfortable colon scan, they're checking me both ends for cancer as my Dad died 2 years ago with bowel cancer and my Sister has had cancer for about 10 years, so it's in the family as it is with a lot of families these days.

      I'll be thinking of you Tuesday and hope everything goes well for you, keep your spirits up and stay strong, we're all behind you.
      Cas xx

      Prayers and hopes it all goes well Cas! Xx
      JD
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      Re: The Medical Thread.
      Reply #140: Oct 19, 2020 09:56:10 am
      Knocked me for six it did but the throat cancer has a 97% success rate post chemo as we've caught it early due to my own docs insistence I see someone regarding my reflux, the Kidney issue should resolve itself as the cancerous bit will be coming out with it and it hasn't spread elsewhere!

      All the very best to you my man in your recovery!
      frizzby5
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      Re: The Medical Thread.
      Reply #141: Oct 20, 2020 01:07:48 am
      Sympathise with you Frizz as I have been going through similar problems myself, its not as bad as yours fortunately but I've also recently had an endoscopy (camera down the throat) and I've been to hospital this morning for a rather uncomfortable colon scan, they're checking me both ends for cancer as my Dad died 2 years ago with bowel cancer and my Sister has had cancer for about 10 years, so it's in the family as it is with a lot of families these days.

      I'll be thinking of you Tuesday and hope everything goes well for you, keep your spirits up and stay strong, we're all behind you.
      Cas xx

      Cheers Cas love. was wondering where you'd got too but have only just read about the name change thing, I'm heading to the Hospital in four hours with op scheduled for 6hrs time so will keep you all informed!
      frizzby5
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      Re: The Medical Thread.
      Reply #142: Oct 20, 2020 01:09:44 am
      All the very best to you my man in your recovery!



      Cheers Boss.
      AussieRed
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      Re: The Medical Thread.
      Reply #143: Oct 20, 2020 02:51:35 am
      Thanks to all 3 of you and to answer your question AussieRed I'm in Collinsville 80k inland from Bowen which is midway between Townsville & Mackay treatment is in Townsville.
      Steve

      Ok never heard of it...wow that's the fkn out back mate!
      Roddenberry
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      Re: The Medical Thread.
      Reply #144: Oct 20, 2020 05:08:37 am
      Wow, best of luck y'all, going blind in one eye, hopefully temporarily, has certainly been put in to perspective, which is a neat trick with one eye.
      Klopps Snood
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      Re: The Medical Thread.
      Reply #145: Oct 20, 2020 01:08:07 pm
      Cheers Cas love. was wondering where you'd got too but have only just read about the name change thing, I'm heading to the Hospital in four hours with op scheduled for 6hrs time so will keep you all informed!

      I was thinking about you this morning when I woke up, wishing you all the very best Steve and hope the op is a success.
      frizzby5
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      Re: The Medical Thread.
      Reply #146: Oct 20, 2020 02:00:54 pm
      Out of surgery and recovering results to follow, currently making a pig of myself with Ice pops, sandwiches and TEA made with my own IMPORTED teabags, Non of this Aussie Bushells Crap, ;D! Thanks forall your good wishes YNWA!
      Klopps Snood
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      Re: The Medical Thread.
      Reply #147: Oct 20, 2020 10:00:13 pm
      Out of surgery and recovering results to follow, currently making a pig of myself with Ice pops, sandwiches and TEA made with my own IMPORTED teabags, Non of this Aussie Bushells Crap, ;D! Thanks forall your good wishes YNWA!

      Made up it went well Steve, all the best.
      frizzby5
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      Re: The Medical Thread.
      Reply #148: Oct 23, 2020 08:32:42 am
      Made up it went well Steve, all the best.

      Cheers Cass.
      gareth g
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      Re: The Medical Thread.
      Reply #149: Oct 24, 2020 04:14:26 pm
      Out of surgery and recovering results to follow, currently making a pig of myself with Ice pops, sandwiches and TEA made with my own IMPORTED teabags, Non of this Aussie Bushells Crap, ;D! Thanks forall your good wishes YNWA!
      When you get a chance, send me your postal address! Got some nice Welsh medicine to send you.

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